Sep 22, 2020

16 things I would want if I got dementia

  1. If I get dementia, I want my friends and family to embrace my reality. If I think my spouse is still alive or if I think we’re visiting my parents for dinner, let me believe those things. I’ll be much happier for it.
  2. If I get dementia, I don’t want to be treated like a child. Talk to me like the adult that I am.
  3. If I get dementia, I still want to enjoy the things that I’ve always enjoyed. Help me find a way to exercise, read and visit with friends.
  4. If I get dementia, ask me to tell you a story from my past.
  5. If I get dementia and I become agitated, take the time to figure out what is bothering me.
  6. If I get dementia, treat me the way that you would want to be treated.
  7. If I get dementia, make sure there are plenty of snacks for me in the house. If I have dementia I may have trouble explaining that I’m hungry.
  8. If I get dementia, don’t talk about me as if I’m not in the room.
  9. If I get dementia, don’t feel guilty if you cannot care for me 24 hours a day, seven days a week. It’s not your fault, and you’ve done your best. Find someone who can help you, or choose a great new place for me to live.
  10. If I get dementia and I live in a dementia care community, please come and visit me often.
  11. If I get dementia, don’t act frustrated if I mix up names, events or places. Take a deep breath. It’s not my fault.
  12. If I get dementia, make sure I always have my favourite music playing within earshot.
  13. If I get dementia and I like to pick up items and carry them around, help me return those items to their original places.
  14. If I get dementia, don’t exclude me from parties and family gatherings.
  15. If I get dementia, know that I still like receiving hugs or handshakes.
  16. If I get dementia, remember that I am still the person you know and love.

Visit Rachael Wonderlin’s website.

Image: Kali9, iStock.

Leave a Reply

Your email address will not be published. Required fields are marked *

Advertisement
Advertisement
Advertisement

How do we protect the human rights of people living with dementia?

  A summit in Sydney today looked at the experiences of people living with dementia in residential aged care through a human rights lens. The summit, ‘People living with dementia, human rights and residential aged care’, arose from the research project ‘Safe and just futures for people living with dementia in residential aged care’. The... Read More

Dementia: “Get to know the person, the disease is secondary”

Tracey Maxfield writes for HelloCare about her experience working as a nurse caring for people living with dementia. She also writes about her depression, and what led her to eventually write her book, ‘Escaping the Rabbit Hole’. Ever since I was a little girl, I wanted to be a nurse. When I was two yrs. old, I used to bandage my teddy, at... Read More

Doctors regularly miss dementia in their patients

A UK study has found that in nearly 40% of cases, doctors aren’t aware that patients they are treating have dementia. A study by the University College London found that medical staff are regularly treating patients without realising the patient has previously been diagnosed with dementia. The researchers say elderly people who are living with dementia are being sent... Read More
Advertisement