The Australian College of Nursing has called for a national conversation about palliative care and a focus on ensuring people with life-limiting illnesses receive the personalised care and support they need.
Launching its white paper ‘Achieving Quality Palliative Care for All: The Essential Role of Nurses’, ACN CEO Kylie Ward said, “The death of someone we love is exceptionally difficult to face, and I think that has made it challenging for us as a nation to have frank and fearless policy discussions about how we care for people who are confronting their mortality.”
“Palliative care should be provided throughout our health care system – in general practices, aged care facilities, in the community and even in people’s own homes,” she said.
Seventy per cent of the 160,000 deaths in Australia each year are due to expected causes, and therefore those people could receive palliative care.
In addition, the needs of those receiving palliative care are becoming more complex, as Australia’s population ages. In the five-years from 2011-12 to 2015-16, there was a nearly 30 per cent increase in hospitalisations for palliative care.
The white paper says a nurse-led model of care is the key to ensuring palliative services improves quality of life, reaches more people, and is cost effective.
Distinguished Professor Patsy Yates FACN, told HelloCare, “People who are dying have complex physical, emotional, social and spiritual needs.
Nurses “are well placed to ensure people who are dying receive comprehensive, holistic care that address these complex needs,” she said.
“They often need care over extended periods of time from a range of different care providers. Nurses provide holistic 24/7 care across all care settings.”
“We need to develop and resource models of care that ensure more proactive and individualized approaches to care delivery for all people at end of life,” Prof Yates said.
“This means that palliative care needs to be integrated earlier into the care trajectory for many people. Such models will require an appropriately qualified and supported nursing workforce,” she said.
Prof Yates said Australia needs more palliative care services, and does not have the staff to meet demand.
“There are many people in Australia who could benefit from palliative care and do not yet receive it,” she said.
“The demand for palliative care will increase significantly as the population ages. This requires a workforce where all health professionals have some knowledge and skills in palliative care, as well as sufficient numbers of specialists across all health professions.
“We do not yet have the numbers required to meet this demand, especially across rural and remote areas of Australia,” she said.
Prof Yates said palliative care services should be available to help people die close to home, even in remote and regional areas.
“It is important that we are able to support people to die close to home wherever it is possible, she said.
“But we must ensure that they receive the same standard of care as those living in metropolitan settings.
“Some of the best models for supporting rural and remote palliative care delivery ensure strong partnerships between specialist services and generalist services for consultation and capacity building.”
Remote and regional centres have to find innovative ways to access the palliative services they need, Prof Yates said.
“Technology can be important to enable access to specialist services,” she said.
“It is also important to look at local community capacity such as through community agencies as such community supports can often be mobilized to provide the social, practical and emotional supports needed for the person who is dying and their family.”
“The impact of death in small communities can also result in significant grief. It is important that bereavement support is part of services for this population,” said Prof Yates.
Palliative care to be introduced earlier? When would that be exactly?
Palliative care is available in almost all areas including regional districts, we call them hospitals and nursing homes.
What I read is that the tax payer should fund our desire to die in their own home and not be inconvenienced by using facilities already available and already funded?
What a lot of nonsense, there is no added dignity or freedom jn dying in your own home rather than a facility, in fact I find it selfish to have your family worried, upset and inexperienced. It is certainly not beneficial for the family and grandchildren, each time these little kids walk past that bedroom they know that granny died in there. This is not what I want my home to be like after I die.
People should be a bit realistic and embrace ehat we have now. Palliative care is generally well managed, certainly is in residential facilities… this is what we do and it’s a relief to see someone pass away in a caring environment then being able to go home and a bit of solace and reflection.
Hello Anton,
With respect, I would like to respond to some parts of your comment.
It is suggested in the article that palliative care should be integrated earlier, as there is indeed an individualised, case by case illness trajectory faced by patients and their families. Poor pathophysiological prognoses and expected decline estimates might allow the palliative care process to begin earlier. Knowing this, addressing the complex needs of a patient and their family is achievable, allowing comfort, dignity and closure during the onset of patient decline.
Anecdotally, the gap between aged and palliative care is too small and does not allow individuals to fully experience and celebrate the end of their life with their loved ones.
To comment on your stance of dying in your own home as nonsense, I would like to offer that this response is completely subjective in nature.
The call for palliative care in the home should be supported by data, however, I believe there is weight behind home care as a good alternative for those who desire it.
Finally, palliative care facilities are not always available for those in rural and remote areas, for those who wish to die as close to their home and family as possible.
Thank you for opening the discussion.
Kind regards,
Jak
due to expected causes
This means that palliative care needs to be integrated earlier into the care trajectory for many people.
Subjective
No facilities in remote areas