May 01, 2019

People living with dementia and carers power up to call for leaders to make dementia a priority

In the lead up to the federal election, people living with dementia and carers are asking all Australians to call on their local Members of Parliament and candidates to make dementia a priority in their visions for Australia.

Dementia Australia Chair Prof Graeme Samuel AC said the prevalence of dementia is growing exponentially and Australia needs decisive action and national investment to ensure the outcomes for people living with dementia are adequately considered.

“People living with dementia and carers and anyone in the community who has been impacted, have the most powerful voice during election campaigns,” Prof Samuel said.

“We are encouraging the community to share their experiences and join in our call for a commitment of $30 million from the federal government to create an inclusive future where all people impacted by dementia receive the care and support they need and deserve.

“As a result of extensive consultation with the community, we know the priorities for people living with dementia are timely and appropriate diagnosis and support, quality dementia care standards that are person-centred, and the need to reduce discrimination.”

To enable anyone to engage their local candidates this election, Dementia Australia has developed a campaign action pack with tips on how to:

  • Arrange a meeting with your local candidates.
  • Call or write to your respective candidate.
  • Engage them in conversation at an event or when they come door knocking.
  • Contact them via social media on Facebook, Twitter and LinkedIn.
  • Call your local talkback radio station.

Isabelle Burke, dementia advocate, daughter and care partner said, “We have to remember that we’re not just keeping people alive for as long as possible, we’re keeping them alive with a great quality of life with rewarding experiences, enriching their lives as much as possible and allowing them to do things for as long as possible.”

Dennis Frost, dementia advocate, living with dementia, said, “I have found some people’s reaction to my condition to be near destructive, eroding my ability and desire to go out into the community.”

“During the election period, every action and every conversation makes a difference to reducing stigma and moving towards better care for people of all ages, living with all forms of dementia,” Ms McCabe, CEO Dementia Australia said.

“With the focus on the Royal Commission into Aged Care Quality and Safety coinciding with the election the most important thing is to take advantage of this occasion and have your say.”

Get involved in our campaign to engage political candidates this election. Check out our action pack here.

Leave a Reply

Your email address will not be published. Required fields are marked *

Advertisement
Advertisement
Advertisement

Dementia: “there is no shame involved, my ignorance had lead me to feel that way”

Dementia ambassadors from around Australia, people living with dementia and their families, and politicians gathered in Canberra yesterday for the Parliamentary Friends of Dementia meeting. Peter Gill, who is living with dementia, spoke movingly about his experiences since being diagnosed. Mr Gill said he was “shocked and ashamed” when his geriatrician told him he had... Read More

Simple tips for helping someone living with Dementia during the pandemic

We've detailed some of the things aged care workers, family and friends can do to help alleviate potential struggles for those living with Dementia during COVID-19. From printing off hygiene reminders to visiting virtual museums there are many creative ways to make life a little easier and more enjoyable. Read More

Everybody’s Oma: A heartwarming approach to dementia care

Oma became an internet sensation when her son, Jason van Genderen, began posting whimsical videos of the family coming together during lockdowns to care for the Dutch matriarch, who was living with the effects of dementia. Now Jason has made a heartwarming feature film, set to premiere at the Sydney Film Festival. Read More
Advertisement