Apr 29, 2025

Caring for Margo: A husband’s experience of dementia’s slow progression

Writer Michael Preston captures the quiet strength of a husband facing life’s greatest challenge: letting go while still holding on. [iStock]

Four years ago, Larry and Margo began a new chapter in their lives by moving into a residential care facility. They understood that Margo’s diagnosis of dementia would be better cared for with the support of skilled professional caregivers.

The peaceful surroundings of the care home offered comfort and security, ensuring that Margo received the specialist attention she needed while allowing Larry to find peace of mind in the knowledge that his beloved partner was in capable hands.

They decided on the local facility, renowned for its exceptional reputation in delivering compassionate care and outstanding service.

Sharing a cosy double room, they worked to infuse it with a sense of warmth and familiarity, personalising the space with photos and mementoes that reminded them of home.

As they settled in, they quickly forged bonds with fellow residents, finding camaraderie in shared experiences and stories that blossomed into genuine friendships, thus creating a vibrant atmosphere that filled the room with laughter and companionship.

They spent every moment together, from daily organised activities to meals in the dining room and even socialising in the coffee shop downstairs every morning.

Reuniting with old friends and neighbours from the community and the new friends they had made brought them immense joy.

Larry enjoyed researching his family history online and connecting with new friends. Meanwhile, Margo thrived in her weekly movie nights, bingo sessions, and
lively chats with the ladies.

As time went on, Margo’s condition deteriorated; initially, she would forget words, names, and faces, and then she became confused in situations and frustrated with Larry.

This kind of conflict and change in Margo’s personality was new to Larry. Until now, they had led a harmonious, agreeable married life, rarely exchanging a cross word.

Larry was overwhelmed with anxiety and remorse over how the disease had taken over the once calm, soft, warm persona of his beloved Margo.

After a family conference with the doctor, they decided on the best way forward for the couple’s long-term well-being. Margo moved into the dementia memory support unit within the same facility.

This move provided her with specialised care and a comforting environment where Larry could visit her often. It allowed them to maintain their cherished connection during this challenging time.

The transition period was a whirlwind of emotions for Larry, marked by a heavy weight of guilt mingling with waves of sadness and an overwhelming sense of loneliness.

Each day, he grappled with regrets that haunted him, casting shadows over the decision to have Margo moved.

Margo’s experience was a cascade of confusion as she navigated this strange new world that felt utterly foreign. The unfamiliar surroundings, the unfamiliar staff
bustling around her, and the faces of residents who were mere strangers added to her disorientation.

Searching for any hint of recognition amidst the chaotic environment only deepened her feelings of isolation in this uncharted territory.

Larry once described how the once-bright skies and sunshine he and Margo shared had turned into dark clouds and stormy weather, reflecting the changes he saw in his wife and the devastating impact dementia had on her.

Each day presented a unique challenge for Larry during his visits to see Margo, often finding himself haunted by the memory of that heart-wrenching moment when she pleaded with him to take her home, tears streaming down her cheeks as she clung desperately to his arm.

The anguish in her voice still echoes in his mind, a stark reminder of the bond they once shared.

The experienced staff are trained in navigating these emotional moments, gently intervening and affirming her feelings by offering the reassurance and comfort she needs and skillfully redirecting her attention away from her distress.

Witnessing this interaction was both confronting and agonising for Larry, deepening the weight of his guilt over the decision to place Margo in a situation where she must seek solace from others, far removed from his protective embrace.

Each visit with Margo is like playing Russian roulette, not knowing what kind of mood she is in or what feelings she’ll want to express.

It’s like a long goodbye that keeps repeating itself, and he never knows what to expect when he opens the door to her room. Now, he tries to enjoy the good days and support her through the bad ones, accepting that his journey in life is different from Margo’s.

Larry and Margo have always held deep-rooted religious beliefs, a bond that strengthens them with each passing day. Every Sunday, they find solace together in the warm embrace of their church, where the gentle sounds of hymns and the flicker of candlelight create an atmosphere of reverence and hope.

During their moments of prayer, Larry ardently seeks peace for Margo while he asks for guidance and strength to navigate the challenges ahead of him.

Larry has gone through all the stages of denial, guilt, and anger now in acceptance of the choice the family made to separate them. He knows the inevitable lies ahead
and realises life will never return to how it used to be.

No one can truly predict how you might feel or react when faced with this situation. While each person’s dementia journey is unique, there is a link of
unwavering bonds of love, expressed by simple gestures like a comforting hug or a tender kiss.

The highway of life, with its winding twists and turns, often leads us down unexpected diversions, revealing the intricate and mysterious ways in which the universe weaves our fates together.

Larry has come to a profound realisation that prioritising his health and well-being is essential for his peace of mind.

He finds comfort in knowing that Margo has skilled and compassionate professionals who ensure she receives the support she needs.

With the unwavering backing of his family, loyal friends, and dedicated staff, he feels a sense of solace, allowing him to focus inward and nurture his own needs and aspirations as he navigates this challenging time.

As Larry reminisces about the countless treasured moments from his happy marriage to Margo, he feels a profound gratitude for the compassionate decision that led to moving her.

The memories and laughter they shared, the quiet evenings spent in each other’s company, and the adventures that marked their journey together filled his heart.

Looking back, Larry understands that the decision to move Margo to the dementia unit was made with deep love and compassion, a heartfelt choice made in her best interests.

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  1. What a wonderful loving couple and Larry is so caring of Margo. You write beautifully Michael.

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