Jan 13, 2022

Mum shares experience of ‘catastrophic’ staff shortages as autistic son left without carers

Autistic son NDIS payments

With support workers increasingly unable to work from illness or isolation needs, Brisbane mum Sue Grier describes an industry reeling – with one in six Australians, like her own child, now at risk.

Sue, a staff member in the sector, shared her experience with 9Honey Parenting, detailing how her 36-year-old-autistic son, William, has been left mid-shift as support workers quickly exit after receiving news of their positive test. 

Unfortunately, this is not an isolated incident. Sue tells of multiple families who have been left abandoned with no support, another consequence of the Omicron outbreak. 

She continues, “However, my son is one of the lucky ones. He has his mum and his sister and we’re really strong advocates in the disability sector.

William has Down’s syndrome and has been diagnosed with autism, and currently he lives on his own. He has routinely been supported by a team of 10 support workers, however, recently only half of that number have been available. 

Following new government stipulations surrounding close contact rules, PCR and rapid antigen testing, many support workers have had no choice but to isolate due to COVID-19 exposure.

With an already exacerbated NDIS sector due to the pandemic, it has become evident that replacing these staff is an ‘impossibility’ as major nationwide staff shortages continue.  

‘We are being smashed’

CEO and founder of Kynd, Michael Metcalfe – an online platform that coordinates support workers with NDIS participants – describes how his company is barely managing while at the core of the crisis. 

He says, “We are being smashed – requests for support worker services are up 110% in the last 48 hours.”

The numbers aren’t small. Falling sick, or forced to isolate, hundreds of essential NDIS support workers have been cancelling shifts. The one in six Australians who rely on NDIS help are being left stranded. 

Metcalfe evaluates, “We’ve never seen this level of sudden demand.”

Sue agrees, believing the sector is at a “crisis point”. 

“The issue is not simply just being down a few staff, but that this leads to major disruptions to the necessary care William needs and his general health.”

The newly implemented rules surrounding what constitutes a ‘close contact’ has also brought on confusion, additionally, compounded by the difficulty to source RAT tests, doing the ‘right’ thing has become increasingly difficult. 

Sue outlines, “We can’t get tests, they’re nowhere. So how can we ensure that we are COVID negative? There’s just no way to do it.”

Metcalfe highlights the lack of accessibility when it comes to RAT tests. This situation is hitting the disability sector forcefully as the majority of workers and NDIS participants have neither the time nor money to spend the hours necessary to source the available tests. 

Metcalfe explains, “Most NDIS participants and support workers are unable to ‘fight it out’ for [rapid antigen] tests,”

“[And] without access to rapid antigen tests people will be cancelling support unnecessarily, or worse, they will continue to go to work, unknowingly contributing to the spread.”

‘It’s getting really grim’

As an experienced disability sector employee herself, Sue shares how she has been assisting worried families “non-stop” over social media. 

She says, “I’ve had non-stop private messages through social media over the last 72 hours from NDIS participants and their family members.

‘He would not cope’

Sue is bothered most by the knowledge and thoughts for those with disabilities, who don’t have the immediate support of family to care for them. 

Highlighting them, she says, “There are a lot of people out there with disabilities who go through it all alone. I have no idea what’s being offered to them.” 

“That’s probably the scariest thing.”

Another significant concern Sue is contending with is the future possibility of William contracting COVID-19. 

She worries, “If William had to go to hospital due to COVID-19, he wouldn’t understand. He would feel abandoned and he would not cope.

“They would have to tie him to a bed. He would think he was deserted. I would have to bring him home – I couldn’t let him think his family had deserted him.”

Sue continues, “The reality for disabled patients in a hospital during the pandemic is that they would not have access to the same support team, and family support that they require on a daily basis.

“There are many people in the sector who have really high-complex medical issues, and I don’t know if this would be catered for during their hospital stay.”

Government driving uncertainty

Speaking to 9Honey Parenting, Sue conveys that her best hope for resolution in the current crises is squarely upon the government stepping up to the plate. 

“There has been no clear direction and no guidance. The government has really let us down.”

Sue advises, “[Rapid antigen] tests need to be made free and directly available to the disability sector, and I’m encouraging everyone I know to speak out, so we can get there.”

Leave a Reply

Your email address will not be published. Required fields are marked *

  1. I would seriously suggest you actually contacting Sue about the comment about staff shortages. Yes William has had his support team decrease at the moment due to covid and needing to isolate but none of them have walked out mid shift. Sue has corrected this on the ABC on Sunday as this was published by other agencies. How do I know this? I am William’s sister and I work very closely with his whole team. The pandemic has been a massive strain on the entire workforce and the government should have prepared better for this.


Does Caring For Something Make You Live Longer?

Living a long and happy life is something that almost everyone aspires to, and it’s safe to say that in 2019 there is no shortage of people who are willing to charge you a fee to tell you how to make that happen. Super-foods, phone applications, wonder-drugs, and even happiness itself, have all been thrown... Read More

“One happy year might seem a better option than three unhappy years at the end of life”: a human rights approach to meal times

  How do we support older people to continue making choices about their own lives, even as they approach death? This was a topic tackled by Professor Colleen Cartwright, Emeritus Professor and Chair of the Human Research Ethics Committee, Southern Cross University, at Friday’s Lantern Project’s 2020 Online Conference. Professor Cartwright began by explaining there... Read More

Why The Increase of Aged Care Complaints is a Good Thing

Traditionally, complaints are seen as a bad thing. If a person is making a complaint, it means that something is not going well. And that applies to aged care as well – if a resident, loved one or staff member is making a complaint, then it is highly likely than an older person, or a... Read More