Aug 21, 2019

Restraining residents is an abuse of human rights

 

A government committee has heard that Australia’s regulation of the use of physical and chemical constraints is in breach of human rights conventions.

Former aged care minister Ken Wyatt approved the new regulations to limit the use of chemical and physical restraint in April 2019, and they became effective in July.

But a special hearing was held yesterday after a number of groups warned the Parliamentary Joint Committee on Human Rights that the regulations raised human rights concerns.

Consent not required for chemical restraint

Juanita Breen, senior lecturer at the Wicking Dementia Research and Education Centre, appeared at the hearing as an expert witness.

She told HelloCare there were two key themes to the hearings. The first was the fact that different regulations have been made for physical and chemical restraint.

Under the new regulations, physical restraint requires previous measures to have been tried, and those measures documented, the prescriber has to know the person, the person has to give informed consent, and there must be documented follow up.

But for chemical restraint, these measures do not apply. Most importantly, consent is not required; the person only has to be informed they have been given the medication “if practicable”.

“Informed consent is a basic human right, but it doesn’t seem to apply in nursing homes” Ms Breen told HelloCare.

Regulations rushed

The other key theme of the hearing was the regulation was rushed, and developed mainly on the advice of the medical profession, with little legal or other representation which might have cautioned against breaches of human rights or the impact of the regulations in practical terms.

New regulations a “missed opportunity”

Ms Breen said the new regulations were a “missed opportunity” to provide regulations that could have informed “best practice”.

She said the fact the new regulations make physical restraint harder to access is almost like endorsing the use of chemical restraint. “It’s like saying it’s okay”, she said.

Ms Breen said she hopes the new regulations will be rescinded.

“Inconsistent with Australia’s obligations under several human rights treaties”

In its letter to the joint committee ahead of the hearing, HRW said the United States’ experience is that use of psychotropic medication is associated with a nearly doubled risk of death, falls, stroke, and the inability to stay awake to spend time with loved ones.

“This legislation, which aims to regulate the use of restraints in aged care facilities, is inconsistent with Australia’s obligations under several core human rights treaties that Australia has ratified,” HRW wrote.

“The use of physical or chemical restraints for control, punishment, retaliation, or as a measure of convenience for nursing facility staff should be prohibited.”

“Medicines should only ever be used for therapeutic purposes and with the free and informed consent of the person receiving them.”

Who will give consent when 40% have no visitors?

A letter from Dr Colleen Pearce, Public Advocate from the Office of the Public Advocate, to the joint committee before the hearing said it was surprising, “given the legal and human rights affected by the use of restraint and seclusion” that the regulations were not developed through an Act of Parliament “after consideration and debate”.

She said it has been reported that 40 per cent of people living in residential aged care have no visitors, and therefore there is a question to answer about who would give consent in these situations, and who would be informed when chemical restraint is applied?

She said the regulations “are inadequate to offer real human rights protections”.

A “complex” issue

Leading Aged Services Australia CEO, Sean Rooney, told HelloCare, “The use of chemical or physical restraint is a complex issue in an aged care setting where behaviours can sometimes pose a risk to the resident or others. 

“LASA believes that restraint measures should only be implemented after all other strategies to deal with these behaviours have been exhausted.

“The use of restraint is a shared responsibility involving the resident, their family or advocate, a GP and other medical professionals, pharmacists and care staff.”

Mr Rooney said better education is needed in the community and among aged care staff about how dementia affects people, and how to manage the symptoms of dementia.

“LASA has recommended to government the development of appropriate, standardised processes for recording, reporting, monitoring and reviewing physical and chemical restraints as part of any legislation regulating restraint, whilst also calling for appropriate funding to ensure providers are adequately resourced to meet the care needs that older Australians need and deserve.”

Leave a Reply

Your email address will not be published. Required fields are marked *

  1. I note with interest that Dr Colleen Pearce reported that 40 per cent of people living in residential aged care have no visitors. She may be interested to know the origins of this unverifiable statistic.
    At Ken Wyatt’s Press Club Address in 2017, Ken said “40% of residents in an aged care home do not have any visitors”. When I asked Ken’s chief advisor whether she could verify this figure, she told me she could not. So how did Ken come up with this figure?
    When Ken Wyatt was visiting an aged care home just prior to his Press Club address, the Manager guesstimated that around 40% of their residents did not have any visitors. Ken repeated this guesstimate during his Press Club Address.
    This unverifiable statistic has been repeated so many times it is considered a fact. It is not!

  2. I think everyone should consider living next door to a person that has serious cognitive ailments. It can be in the suburbs or a nursing home it doesn’t matter.
    While the government got rid of residents responsibilities in the new Charter everyones neighbour deserves to live free from fear and intimidation. It was a massive mistake to remove responsibilities, what part of society is acceptable without respect for fellow people?

    People need medical intervention to protect themselves and others, nurses get pinched and punched on a regular basis, imagine trying to get staff to come to work knowing they will be attacked by a manic resident.
    By all means get rid of any over medication incidents but managed medication is essential.

  3. In our nursing home, we have probably about 3% that do not have next of kin to sign for consent, and we do not hand out chemicals arbitrarily. I do not believe most nursing homes would, as there are other issues when this is done like increased falls, confusion etc. Residents are given medication to calm them at times, and only when all other avenues are explored, and the behaviour is a risk of harm to staff, residents and themselves, are they sedated. When people talk about all the lovely things to do for people with dementia , they seem to forget that it is dynamic and progressive and you might get something in place and then the disease progresses , so you are always updating the care given. Some residents need to be sedated as they are in distress and aggressive due to their extreme confusion, they don’t all just walk around looking a bit lost. They all progress differently and these is no ” one size fits all” approach that can be applied to dementia care.

Advertisement
Advertisement
Advertisement

The Best Medicine, is Simply ‘L-O-V-E’

Love Lives Here a documentary filmed in an American residential ‘memory care community’ as they refer to it in the States, preferring this term over your typical ‘nursing home’ or ‘aged care facility’ as we frequently refer to them in Australia. The community is owned and operated by provider Silverado that takes the core operating... Read More

Australian Trial for New Alzheimer’s Drug: What it Could Mean for the Aging Generation

In Australia, more than 350,000 people now have the disease, with a projected one million likely diagnosed within the next 40 years. This year, in particular, there has been a huge breakthrough thanks to a new discovery. Australian trials for a new Alzheimer’s drug began this month in Melbourne, which shows incredible promise in halting... Read More

The Letters of Love and Dementia

The Letters of Love and Dementia Campaign emerged from a Celebrate Ageing film called Our Hearts Are Bigger, which shows Anne Tudor and Edie Mayhew opening and reading letters they wrote to each other every day for a week. The film is part of a series documenting Edie’s journey with Younger Onset Dementia and Anne and Edie’s approach to deepening their... Read More
Advertisement